Saturday, April 30, 2011

Notes from Day 3 of the Autism Research Institute Conference

Opiate peptides are released from gluten & casein by enzymes in GI tract and regulate cysteine uptake (inhibit the uptake) -- Decreased cysteine uptake causes decreased antioxidant capacity and leads to increased GI inflammation, autoimmune disorders, and Autism
One reason some children benefit from low-dose naltrexone (LDN) is that this opiate antagonist blocks inhibition of cysteine uptake by morphine & gluten/casein-derived opiate peptides

Greater increase in cysteine uptake with human milk than with formula

Study showing milk-free diet down regulates folate receptor autoimmunity in cerebral folate deficiency syndrome

Colostrinin is a sheep colostrum that has been shown to improve cognitive function in Alzheimer's patients

Ecogenetics = study of environmental factors that interact with genes to cause health & disease.  Ecogenetic adaptation is occurring among Somali residents in Minnesota
--- < 1:1000 Somali children with ASD in 1993 (before immigration to Minneapolis, MN in mid-to-late 90's)
--- 1:60 Somali-American school children with ASD in 2005
--- 0.17% of Caucasian, Hispanic, and African-American children in ASD programs in 2005; 0.28% in 2008
--- 1-1.5% of first generation school age Somali-Americans enrolled in ASD programs - peaked in 2005; 0.9% in 2008.
(Information is from the Minnesota department of health, 2009)

80% of people in US with ASD are less than 22 years old
(Information from the Autism Research Institute, 2011)

More from Day 2 of the ARI Conference in Atlanta

Children with autism have lower glutathione levels, higher markers of protein damage and higher levels of oxidative stress as shown in research by Jill James.

MeB12 & folinic acid moved behavior (communication, socialization and daily living skills) toward normal and raised glutathione levels over 3 mths (James et al)

Epigenetics (genes are the hard drive and epigenetics are the software that dictates how information is read) are altered by diet, environment and stress. It is the way the genome adapts to environmental change.

Mom"s genetic profile and imbalances affect fetus and can alter metabolism prenatally. In utero environmental factors affect fetal development. If mother carries genetic risk, then this increases the risk of problems in child.

Maternal methylation abnormalities include low folate, methionine, and SAM

Friday, April 29, 2011

Live from Day 2 of the Autism Research Institute Conference

Met an adult woman with autism who is an advocate for the biomedical treatment of all children and adults with autism as she is dealing with tremendous immune, mitochondria and hormonal issues.
She also said that out of 10 physicians she has found only 1/2 of 1 doctor that has helped her. 
Please spread the word so we can teach more physicians how to help these children and adults. Sponsor and encourage a physician to go the healing retreat in June (
This same woman with autism did not have any functional language until she was an adult and now is a spokeswoman!

Live from Day 2 of the Autism Research Institute Conference

Dr O'Hara & Dr. Szakacs are in Atlanta at day 2 of the Autism Research Institute Conference. They are blogging you pearls from the clinician seminar.
Children with autism have at least a 20% lower level of ATP than the Neurotypical control group, some up to 50% less.

The mitochondrial problem, according to Dr. Frye, is more dysregulation and an inability for the proteins to work given the level of oxidative stress in our children with autism.

Thursday, April 28, 2011

More from ARI Conference Atlanta

Rice protein powders are very high in glutamate (excitotoxic) - often better to supplement actual amino acids.

Elevated sarcosine (an amino acid) increases toxicity of substances like formaldehyde - sarcosine should not be present in blood or urine.

Although plant protein has many benefits (decrease ammonia levels, etc), it also has a higher % of glutamate (40% in plant protein & 11-22% in animal protein).
Non epileptic treatments (ketogenic diet, GFCF diet, HBOT) improve seizures as well as improvements in sleep, communications, behavior, attention and mood (frye and Adams, submitted)

More from the Autism Research Institue Conference

Magnetoencephalography (MEG) able to record neruomagnetic signals (like listening for ant footsteps in the middle of a rock concert)

Mitochondrial disorders and seizure HEADD syndrome - hypotonic, epilepsy, autism and developmental delay (filano 2002)
Complex III deficiency and seizures (filipek 2003, poling, 2006)
ASD & mito - 39% with seizures (shoffner 2009)

Cerebral folate deficiency -antibody blocks transport of folate into brain as well as mitochondrial deficiency may lead to lower levels; treat with high dose of folinic acid or 5-meTHF 2 mg/kg/day and casein free diet; antibody test done by dr Quados at SUNY Downstate - 287 chemicals detected in umbilical cord blood, 180 cause cancer, 217 toxic to brain and nearly 200 banned for years
BH4 (tetrahydrobiopterin) used as cofactor for metabolism of dopamine, serotonin and norepinephrine. Found to be lower in children with autism ( oxidative stress decreases BH4 availability (frye et al, neurotherapeutics, 2010))
Study on glutamate (excitatory neurotransmitter) showing excitoxicity may have role in autism as it peaks in second year when regression occurs and namenda may have role in treating this.
If your child has low tone and signs of mitochondrial dysfunction and/or inflammation but normal lab tests then consider testing ck-mb.

Live from the Autism Research Institute Conference in Atlanta, GA

Dr. O'Hara & Dr. Szakacs are in Atlanta at the Autism Research Institute Conference.
They are blogging you pearls from the clinician seminar...

Wednesday, April 27, 2011



Arsenic is a highly poisonous metallic element registered with the Chemical Poisoning and Environmental Toxicity Centers. Inorganic arsenic deposits in the hair, skin, and nails, and once within the hair follicles, as with most toxic metals, it will stay in the shaft for years. Below are some common sources for arsenic:
  • Animal feed
  • Automobile exhaust
  • Colored chalk
  • Herbicides
  • Household detergents
  • Industrial dust
  • Insecticides
  • Non-organic chicken
  • Non-organic rice
  • Pressure treated wood
  • Rat poisons
  • Seafood
  • Wallpaper dye/plaster
  • Water/city and well
  • Wine
  • Wood preservatives
Arsenic is a carcinogen, and those with high levels of arsenic within their tissues are at a high risk for skin, scrotal, liver, lymphatic, and lung cancer. Other symptoms of arsenic poisoning are:
  • Headaches
  • Confusion
  • Drowsiness
  • Convulsions
  • Changes in fingernail pigmentation
  • Vomiting
  • Diarrhea
  • Bloody urine
  • Muscle cramps
  • Convulsions
  • Gastrointestinal upsets
  • Coma
  • Death

Monday, April 25, 2011



Aluminum is a popular metal used in the manufacturing of pharmaceuticals to cookware. Aluminum salts are soluble in water and are, therefore, easily assimilated into the body. Unwanted aluminum is deposited in the brain and nervous system tissues, and will continue to accumulate there. It is commonly known that aluminum is related to Alzheimer's disease.
Aluminum toxicity is sometimes elevated in children and adults with low zinc and behavior/learning disorders such as ADD, ADHD, and autism. High levels of aluminum are found in many colloidal mineral products. Aluminum is commonly found in the products below:
  • Alum
  • Aluminum cans
  • Aluminum cookware
  • Aluminum foil
  • Aluminum silicate found in Kaopectate
  • American cheese
  • Animal feed
  • Antacids
  • Automotive parts
  • Automotive exhaust
  • Baking powder
  • Beer
  • Ceramics
  • Vaccines

Wednesday, April 20, 2011

Your Healing Retreat receives American Academy of Pediatrics Seal of Approval

The excerpt below was taken from page 9 of the American Academy of Pediatrics Section on Complementary and Integrative Medicine's Spring 2011 Newsletter

Your Healing Retreat
Elizabeth Mumper, MD, FAAP

My gratitude to the SOCIM Newsletter for the opportunity to share exciting news about a new venture: Your
Healing Retreat, a path for parents and physicians living and working with autism and ADD will take place
June 3-5, 2011 at the beautiful Kanuga Conference Center in the mountains of North Carolina in Hendersonville.
Four of my professional colleagues, Drs. Nancy O’Hara, MD, Stephanie Cave, MD, Julie Buckley, MD and
Maureen McDonnell, RN and I have worked together as clinicians, teachers, authors and lecturers in the field
of neurodevelopmetal disorders. As busy professionals, we have a hard time practicing what we preach about
self nurturing. Suddenly, we got a wake-up call when the youngest of us developed cancer.
We decided to create a weekend retreat, geared at caregivers- both family members and physicians dealing
with disease processes- that could prove to be helpful to everyone involved, integrating education about the
medical problems with experiences that help those caring for someone with chronic health challenges
successfully care for themselves. Our first retreat will focus on those who care for children with Autism and
Attention Deficit Disorder (ADD).
Physicians who take care of children with autism and ADHD may find themselves in “burnout” mode, due to
the magnitude of their patients’ problems and the frustrations of the parents. The retreat is designed for
medical doctors (especially pediatricians and family practitioners) who wish to understand and learn practical
science-based approaches for identifying and treating the array of medical conditions that impact behavior,
attention and speech of children affected by autism. Your Healing Retreat participants will gain access to
cutting-edge, safe and effective integrative approaches for healing children while recharging their own
batteries. They will learn relaxation techniques, tips to improve their relationships, and strategies to get back
into balance. Kathi Kemper, the former section head of the American Academy of Pediatrics Complementary
and Alternative Medicine division will speak on Stress Management: Mental, Physical and Spiritual.
CME approved lectures scheduled in conjunction with workshops and a myriad of rest, relaxation and healing
opportunities (including morning yoga, massage, hikes, organic food and cooking classes) allow conference
attendees to enjoy a spectacular retreat environment at a beautiful lake in the mountains. During the threeday
intimate meeting, a community will be built––and through the use of interactive web-based tools––
continue to be fostered long after the conference is over. At the conclusion of the “Healing Retreat”, parents
and physicians return home rested, renewed, and rejuvenated, with a resource community and real-time
implementable tools in their proverbial toolbox.
We specifically have designed the curriculum for this retreat to be very friendly and welcoming for those new
to the integrative medicine experience. We have made a conscious decision to avoid focusing on the
polarizing issue of causation with regard to autism and focus on strategies to help children with autism and
ADHD thrive and heal. We are working hard to develop an integrative medicine tool box, so that clinicians
who attend the retreat will be equipped to begin specific treatment strategies when they return to their offices
refreshed and restored.
Your Healing Retreat is a path of education, hope and rejuvenation for parents and physicians living and
working with autism and ADD. Due to the unique structure of the event, we can only accommodate 50
clinicians (MDs and DOs). Visit now to register!

To read the full SOCIM Spring 2011 Newlsetter, click on the link below.

Tuesday, April 19, 2011

Mercury Levels in Fish

Mackeral (King, Spanish, Gulf)
Orange Roughy
Seabass (Chilean)
Tuna (Ahi, Yellowfin, Bigeye, Canned Albacore)

Bass (Striped, Black)
Cod (Alaskan)
Croaker (White Pacific)
Halibut (Pacific, Atlantic)
Mahi Mahi
Perch (Freshwater)
Tuna (Canned Chunk Light, Skipjack)
Sea Trout

Cod (Arctic)
Crab (Domestic)
Crawfish/ Crayfish
Haddock (Atlantic)
Mackerel (N. Atlantic, Chub)
Perch (Ocean)
Sole (Pacfic)
Trout (Freshwater)

Data from:

Wednesday, April 13, 2011

Dyeing Easter Eggs Naturally

Courtesy of Chris Holden, Chef/ Owner of Back on Tract an SCD cook and caterer in Massachusetts.

To learn more visit

Just in time for Easter...

Prepare Eggs: Boil white cage-free organic egss with 1 tablespoon of white vinegar in the water. Let eggs cool when done.

Red: beets, paprika, pomegranate juice
Yellow: turmeric, sage, saffron
Orange: mix 3 parts yellow and 1 part beets
Green: spinach, kale
Brown: tea, leftover coffee, chili powder
Blue: Blueberries
Purple: Blackberries, concord grapes or grape juice
Lavender: red onion skins

Prepare Dye:
1. Chop or crush dye ingredients of desired color
2. Place 2 cups of water and ingredients in saucepan
3. Simmer for 5 to 60 minutes making sure that water is deeply colored
4. Strain dye and add eggs to hot colored water
5. Leave eggs in dye until desired color reached

Be creative.  Use wax crayons to write words or draw pictures.   The wax will not absorb the color.   Use rubber bands to create a tie-dyed effect. Stickers will also add to the fun.   Use your imagination and have fun!

Tuesday, April 12, 2011

Office Space for Rent

We still have additional square footage (~500 SF) available for another like-minded practitioner.   Separate entrance, beautiful and airy space to rent.   Please contact the office at 203-834-2813 if you are interested.

Wednesday, April 6, 2011

Now in Theaters...Wretches & Jabberers

Wretches & Jabberers

Tracy Thresher and Larry Bissonnette are two men with autism who have limited speech but a whole lot to say. As young people, both faced lives of isolation, unable to convey their inner intelligence. It was not until adulthood when each learned to communicate by typing—giving them a way to express their thoughts, needs and feelings—that their lives changed dramatically. After more than ten years of advocating for people with autism, they felt it was time to take their message global—to help people with autism in other countries around the world break through the isolation they both knew so well.
Tracy, Larry and their support team, Harvey Lavoy and Pascal Cheng, joined forces with Academy Award®-winning filmmaker, Gerardine Wurzburg, and Producer, Douglas Biklen.  “Our goal was to shine a light on autism internationally. Larry and Tracy’s journey allowed us to portray the global face of autism through the personal stories of six men and women throughout the world,” explains Producer and Director Wurzburg. The result is the feature documentary, Wretches and Jabberers: And Stories from the Road, a provocative mixture of advocacy, personal portrait and travel adventure film—seasoned with liberal doses of humor.
The film provides a rare opportunity to hear directly from people with autism about how they understand and experience their own disabilities. Larry types, “Autism is not abnormality of the brain as much as abnormality of experience.” Interspersed with their travels are glimpses of Tracy and Larry's formative experiences in the States. For Larry, 52, who spent ten years of his childhood in a mental institution, painting became his outlet. He finds that his art makes people “want to listen to his artistic voice not his autistic voice.” However, he notes, “nothing I did... convinced people I had an inner life until I started typing.” Tracy, 42, spent his school years in segregated classrooms isolated from his peers. His breakthrough also came from typing, when he was 23-years-old. Though he now communicates with audiences of all kinds for his advocacy work, Tracy admits that he is still prone to “intense anger” about his situation. “I have always been very angry about my autism and didn't get seen as intelligent until I was out of high school.”
Despite their struggles, the two men reveal profound wisdom about their lives and convey their acceptance of autism as an expression of the diversity of humanity.  This theme of diversity is underscored by the variety of customs, food and cultures of the people visited by the men—in Sri Lanka, Japan and Finland. Viewers share their eye-opening experiences as they negotiate the terrain of travel, culture and new friendships on what they aptly name The World Intelligence Magnified Tour.

Learn more at